London hospital reviews ending baby's life support
- Author: Adam Floyd Jul 10, 2017,
Jul 10, 2017, 0:20
Charlie's father, Chris Gard, said there is no evidence Charlie has catastrophic brain damage and added: He should have had this chance a long time ago now.
But British and European courts have sided with the hospital's decision that the 11-month-old's life support should end, saying therapy would not help and would cause more suffering.
'He's our son, he's our flesh and blood, ' she said. "We feel it should be our right as parents to decide to give him a chance at life", Yates told reporters Sunday, according to BBC.
Great Ormond Street Hospital said in a statement on Friday that while it is seeking the High Court's opinion about experimental treatment for Charlie, there is worry it will be ineffective and ultimately prolong his current condition.
Charlie inherited the faulty RRM2B gene from his parents, affecting the cells responsible for energy production and respiration and leaving him unable to move or breathe without a ventilator.
His family said the fight was not over.
Under a High Court ruling, GOSH is forbidden from allowing Charlie to be transferred for nucleoside therapy anywhere. "There is nothing to lose, he deserves a chance".
Ms Yates added: "If he's still fighting, we're still fighting".More news: Kanye West reportedly leaves Jay-Z's Tidal, sues for $3 million
The parents of terminally ill baby Charlie Gard have pleaded for their son to be given "a chance" in an emotional press conference outside Great Ormond Street Hospital today.
A supportive Pope Francis last weekend backtracked on the Vatican's initial stance that the parents should accept the limits of medicine, and Vatican-owned Bambino Gesu Hospital began exploring the possibility of admitting Charlie to its Rome facility.
Sky News's Ashish Joshi spoke to a leading American pro-life lawyer who is close to the family, the chief executive of Americans United for Life, Catherine Glenn-Foster, about the new High Court hearing, who said it was "very, very, promising".
The boy's parents are convinced that an experimental therapy, developed by a United States neurologist, may help their son recover some functions - even though it has never been tested on someone with Charlie's particularly severe form of the disease, known as mitochondrial DNA depletion syndrome.
Charlie suffers from a rare genetic condition and has brain damage.
Charlie's parents want to bring Charlie to the USA, where a specialist is willing to offer him an experimental treatment for his rare condition called infantile onset encephalomyopathic mitochondrial DNA depletion syndrome, or MDDS. The British hospital treating a terminally ill baby boy said on July 7, 2017 it would examine claims that he could be treated after US President Donald Trump and Pope Francis drew worldwide attention to the case.
An online campaign to send Charlie to the USA for treatment has raised more than 1.3 million pounds ($1.7 million). A US hospital has offered to ship the drug needed for the therapy to Britain for Charlie.
But it said officials have met with Charlie's parents to let them know about the requested new hearing.